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The Research Plan

We know how daunting it can be to be diagnosed with a medical condition and the difference it makes to have information about the condition.

It has become evident that most survivors of SJS and TENS in the UK have had little or no information on how their “lucky escape from death experience” could change their lifestyle for the rest of their lives. As part of our aim to empower survivors, we hope to make this information available during their recovery and discharge from hospital.

To achieve this, we are currently conducting a qualitative research amongst SJS and TENS survivors in the UK until December 2012.

Please email us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it if you would like to take part in this research.

 

 

How you can donate to us

You can support our work by sending your donations to the address below:

SJS AWARENESS UK
P. O. Box 2331
IG1 9AR

 

 

 

 

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Support

Provide Support for survivors and their families to help them overcome the emotional and psychological challenges

Promotion

Promote inclusion to the general workforce by providing advice on how possible reasonable adjustments can remove the major barriers in an individuals working environment.

Advice

Provide advice on Individual Education Plans (IEP) for survivors wishing to pursue their educational goals.
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The SJSAwarenessUK website is dedicated to raising awareness of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis in the UK
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