Note to survivors
Hi survivor,
I am so glad you found us. Be assured that you are not alone!
Just like you, I have also experienced the challenges of living with the after effects of SJS/TENS so I can relate to the anxieties and frustrations you go through daily. After an extensive research, I discovered there was no support out there for SJS/TENS Survivors but I was fortunate to be introduced to another survivor in my area during my worst moments and found great relief from sharing our challenges on phone.
I thought of you and other survivors and imagined how we could benefit from having a platform to support each other. Finally, after being encouraged by my Consultant, SJS AWARENESS UK emerged.
Together, I believe we can form a strong group with one voice and make the anxieties of living with SJS/TENS a thing of the past!!!
Thermutis Nadier Lawson
Founder
Quotes from Survivors
"An SJS group has been an aspiration for quite long time now, an organization that not only would help sufferers to cope with the condition but that also would fight for more accurate lines of treatment as well as for more research into the condition" ...Paulo
"to be honest there is no where to go for support other than a computer" ...Karen
"are there any long-term side effects? I am ALWAYS tired and am suffering from joint pain. I would love to hear from anyone else who has had SJS. Doctors know nothing or very little about SJS!!" ...Andie
"The main reason I am e-mailing you is to firstly say how good it is to find a UK support site," ...Sarah
"I am so pleased that there is someone in the UK that is doing something about this, as I cannot believe the ignorance within the NHS," ...Wendy
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