I am so glad you found us. Be assured that you are not alone!
Just like you, I have also experienced the challenges of living with the after effects of SJS/TENS so I can relate to the anxieties and frustrations you go through daily. After an extensive research, I discovered there was no support out there for SJS/TENS Survivors but I was fortunate to be introduced to another survivor in my area during my worst moments and found great relief from sharing our challenges on phone.
I thought of you and other survivors and imagined how we could benefit from having a platform to support each other. Finally, after being encouraged by my Consultant, SJS AWARENESS UK emerged.
Together, I believe we can form a strong group with one voice and make the anxieties of living with SJS/TENS a thing of the past!!!
Thermutis Nadier LawsonFounder
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