Who We Are

We create awareness, we support survivors

SJS Awareness UK is a charitable organisation established to provide information and support to those affected by Stevens - Johnson Syndrome.

What We Do

Our activities are centred towards the pillars of creating awareness
and providing support to victims, survivors and all stakeholders through information and research


Creating awareness of (SJS) and it’s more severe form Toxic Epidermal Necrolysis (TEN).


Support to survivors and their carers through advice and information.


We provide publicity materials and support for volunteers in their local areas


We link with stakeholder organisation by referring survivors and engage with PPI meetings

Vision & Mission

being well informed about issues affecting health and wellbeing

to bridge the gap for those affected by SJS and TEN through the provision of information and support from the point of diagnosis and through their recovery and adaptation process.


Join The Team

We have a great team from varying backgrounds. Professionals, volunteers and survivors who understand the SJS course and are willing to create the awareness and support survivors  in diverse ways. If you would love to support us to support others we can’t wait to welcome you onto our team.