Web Admin

Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be applying for an adjournment debate in Parliament after the summer recess. This will be to bring our petition before the House to highlight our concerns regarding the diagnosis and treatment of SJS/TEN, the need to improve the level of knowledge and awareness amongst health professionals, and to improve aftercare for those affected. Once it...

Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of SJS?TEN on Wednesday 13th July from 11-11.30am. You can also watch the debate live on the Parliament TV website here ( http://www.parliamentlive.tv/Commons ) Margaret Hodge MP will also be putting the debate up on her Facebook page and website after the debate.

The meeting will begin at 12:30 with an introduction from Anita Hanson, Head Research Nurse at the Wolfson Centre for Personalised Medicine, who has been working in research to help SJS/TEN patients for many years. Christine Randall will speak about the Yellow Card Scheme for reporting adverse drug reactions and the Medicines & Healthcare Regulatory Agency (MHRA). Dr Dan Carr will talk about some of the current research taking place at the University of Liverpool that is helping to predict,...