Our Vision
Our vision is to empower individuals by providing clear and accessible information on health and wellbeing issues. We believe that is the key to making healthier choices and enhancing quality of life.
Our Mission
to bridge the gap for those affected by SJS and TEN through the provision of information and support from the point of diagnosis and through their recovery and adaptation process.
What we do
Discover how we make a difference in the community through our services. We are dedicated to raising awareness, providing support to survivors and stakeholders as well as offering information and supporting research in the field of SJS.
Awareness
We strive to educate the public about SJS, its symptoms, and prevention methods. Through campaigns and events, we aim to increase awareness and promote early detection.
Support
Our organization offers a range of support services to individuals and families affected by SJS. We provide emotional support, resources and a sense of community for those in need.
Inform
Stay informed with the latest news, developments, and research findings related to SJS. We keep our community updated through newsletters, seminars, and online resources.
Research
We support research teams and collaborate with stakeholders to amplify survivor voices. Through referrals and PPI meetings, we enrich research and strive for meaningful change
Join The Team
We have a great team from varying backgrounds. Professionals, volunteers and survivors who understand the SJS course and are willing to create the awareness and support survivors in diverse ways. If you would love to support us to support others we can’t wait to welcome you onto our team.
Who We Are
We create awareness, we support survivors
SJS Awareness UK is dedicated to raising awareness about Stevens-Johnson Syndrome. We strive to provide support to individuals affected by this rare but serious condition. Through education and advocacy, we aim to improve understanding and promote early detection. Our team of passionate volunteers works tirelessly to empower patients and caregivers, ensuring they have access to resources and information. Together, we are committed to making a difference in the lives of those impacted by SJS.
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Our Team
Professor Munir Pirmohamed is Chair in Medicine at University of Liverpool and a Consultant Physician at the Royal Liverpool University Hospital. He leads the M.R.C. Centre for Drug Safety Sciences and focuses on drug response to optimize healthcare and reduce toxicity.
Professor Munir Pirmohamed, Patron
Factsheets
Discover vital factsheets on SJS/TEN, our National Campaign Poster, and support for survivors. Access resources from NHS and Great Ormond Hospital to stay informed and empowered.
