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OUR RESEARCH

The progressive research plan sets out our agenda in the area of research

Engage With Us

With your support we will be able to drive the outcomes we require

Phase 1 & 2

Survey and Factsheet - this is intended to provide information for patients who are living with the long term effects of Stevens – Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN).

Phase 3

Medical Findings - It is hoped that should this be possible, it will be beneficial to many in the near future.

The third phase of our research plan is already in progress by The Wolfson Centre for Personalised Medicine at the University of Liverpool. Though we do not fund this research, we work closely with their research team by referring SJS/TEN survivors interested in participating in this research as well as engaging with their Patient and Public Involvement (PPI) Meetings.

0750 785 5558 / 03332421580

United Kingdom

Opening hours

Monday to Friday

10:30am - 4:30pm

The SJSAwarenessUK website is dedicated to raising awareness of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis in the UK. SJSAwarenessUK © Copyright 2009 - 2025. Charity No: 1159408 & Company No: 07454096 Registered in England and Wales.
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