top of page

WHAT IS SJS / TEN ?

Spot the symptoms, know the facts and support our efforts to educate

Cafe Conversation

Causes and Signs

Stevens-Johnson Syndrome (SJS) and it’s more severe form Toxic Epidermal Necrolysis (TEN) are very serious skin reactions that may be caused by a viral or other infection, but are more commonly caused by a reaction to a drug (Adverse Drug reaction (ADR)). ADRs can range from mild to very severe and can be life threatening, with SJS and TEN being the most serious. These forms for ADRs are classified as auto immune diseases and also affect the mucus membranes.

Webinars and Presentations

Explore impactful video facts, workshops, and presentations by professionals and survivors of SJS/TEN. These resources aim educate and inspire awareness about Stevens-Johnson and Toxic Epiderm Necrolysis. Join us in sharing valuable insights from those with firsthand experience and expertise.

Predicting, Understanding and Treating SJS/TEN: current research in Liverpool - Dan Carr

26:05

The Mechanism of COVID-19

24:04

Yellow Card Biobank Project - An SJS/TEN and Allupurinol Study

03:48

The MHRA Yellow Card Scheme for Reporting Adverse Drug Reactions - Christine Randall

38:25

My Journey with Stevens - Johnson Syndrome (SJS) - Nadier Lawson

07:08

What are the long term effects of SJS

05:12

Some quick facts about SJS/TEN

Discovered in
1992

SJS was first discovered in 1922 by paediatricians Albert M. Stevens and Frank C. Johnson after diagnosing a child with a severe ADR affecting the eyes and mouth.

Difference between
SJS and TEN

The difference between SJS and TEN can be classified by the amount of skin blistered during the reaction. For example, with SJS there can be between 1-10% of skin detachment. Between 10-30% is an overlap of SJS and TEN and greater than 30% skin detachment is classed as TEN.

Research on Adverse Drug Reactions (ADR)

A lot of research is now being conducted into ADRs as they are a major problem. Depending on the severity of the ADR, quality of life can be affected in many different ways.

Factsheets

Discover vital factsheets on SJS/TEN, our National Campaign Poster, and support for survivors. Access resources from NHS and Great Ormond Hospital to stay informed and empowered.

Image by Walls.io

National Campaign Poster

SJS Awareness.png

Volunteering with us

Image by Giulia May

What you need to know

SJS/TEN on the NHS

Image by Lucrezia Carnelos

SJS/TENS factsheet

Great Ormond Street

Newsletter

Stay connected with our newsletter! Sign up to receive exclusive updates, special offers, the latest news directly in your inbox. Join community today and enjoy the benefits – just enter your email!

Join the newsletter to know more about SJS/TEN.

bottom of page