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Our campaign launch at the House of Commons on 3rd February 2015 was sponsored by the Rt Hon Margaret Hodge MP, and following on from this she will now be applying for an adjournment debate in Parliament after the summer recess. This will be to bring our petition before the House to highlight our concerns regarding the diagnosis and treatment of SJS/TEN, the need to improve the level of knowledge and awareness amongst health professionals, and to improve aftercare for those a

Following our awareness campaign launch last February at the House of Commons, Rt Hon Margaret Hodge MP lead a Westminster Hall debate on awareness and funding for the treatment of SJS?TEN on Wednesday 13th July from 11-11.30am. You can also watch the debate live on the Parliament TV website here ( http://www.parliamentlive.tv/Commons ) Margaret Hodge MP will also be putting the debate up on her Facebook page and website after the debate.

The meeting will begin at 12:30 with an introduction from Anita Hanson, Head Research Nurse at the Wolfson Centre for Personalised Medicine, who has been working in research to help SJS/TEN patients for many years. Christine Randall will speak about the Yellow Card Scheme for reporting adverse drug reactions and the Medicines & Healthcare Regulatory Agency (MHRA). Dr Dan Carr will talk about some of the current research taking place at the University of Liverpool that is help

The National Lottery Community Fund Thanks to The National Lottery Community Fund, SJS Awareness UK can support individuals with underlying conditions especially the BAME Community through the pandemic. PHEs report, Beyond the data: Understanding the impact of COVID-19 on BAME groups, found that the highest age standardised diagnosis rates of COVID-19 per 100,000 population were in people of Black ethnic groups. People of Bangladeshi ethnicity had around twice the risk of dea

When faced with rare and potentially life-threatening conditions like Steven Johnson's Syndrome and Toxic Epidermal Necrolysis (TEN), the journey to recovery can be daunting. However, amidst the challenges and hardships, there are stories of hope, resilience, and inspiration that shine through. These survivors' narratives not only shed light on the realities of these conditions but also serve as a beacon of strength for others going through similar struggles. The stories of s

Steven Johnson's Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but serious skin conditions that can be life-threatening. For those affected by these conditions in the UK, finding reliable information and support is crucial. That's where SJS Awareness UK comes in. This dedicated website serves as a valuable resource for individuals and families dealing with SJS and TEN. By providing accurate information on symptoms, treatment options, and support resources avail

Welcome to a platform dedicated to raising awareness about a rare but serious condition known as Steven Johnson's Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) in the United Kingdom. Here at SJS Awareness UK, our primary goal is to provide valuable and accurate information on these conditions, including their symptoms, treatment options, and available support resources within the UK. Our website serves as a hub for individuals seeking to understand more about SJS and TE

COVID-19 mRNA Vaccine BNT162b2 concentrate for solution for injection has been given authorisation for temporary supply by the UK Department of Health and Social Care and the Medicines & Healthcare products Regulatory Agency. This temporary authorisation grants permission for the medicine to be used for active immunization to prevent COVID-19 disease caused by SARS-CoV-2 virus in individuals aged 16 years of age and over. As with any new medicine in the UK this product will b

Professor Munir Pirmohamed, Director of the Wolfson Centre for Personalised Medicine , is supporting Stevens-Johnson Syndrome awareness UK in their bid to receive government support for a national campaign aimed at educating more doctors and patients about a severe adverse drug reaction that effects the skin. The campaign has been presented at an event at the House of Commons, hosted by Labour MP Margaret Hodge. What is Stevens-Johnson Syndrome (SJS)? “Many drugs cause skin r